
I love the nurses and staff at our hospital. They really are wonderful and make being here everyday more bearable. They dress Anne up and put little bows in her hair and they even provide fun times for fall. Today we could dip our own candy apples in the cafeteria! Yum! So Anne took about 25-30 mL this morning for her 10:30 feeding. It was a little more of a struggle from yesterdays success but at least she ate. They took her off of the Phenobarbital so it can clear out of her system before they do a real EEG (guess the last one wasn't real it was a machine like an EEG just not as good) on Monday. She is still on the Zantac. So Monday she should get a swallow study and an EEG and by then hopefully we will know the problem. Thought we would know by Saturday but we are willing to be patient for the right answer. Please pray and fast for little Anne this Sunday if you can. We are praying and fasting that they will find the problem.... not that it has to be solvable, just findable then we can go from there.
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